Ace hasn’t been to any Early Intervention (EI) services since late November. Not because I am a bad mother, but because the very same people who evaluated him and decided he had some issues to work on were making me feel like I was wasting their time taking him to be seen. I should re-word that, as no one can MAKE me feel anything, but that was how I was feeling nonetheless.
He was not cooperating with the massage therapist at ALL, so that was really just a frustrating struggle. I was taking him to OT at the Children’s Neurodevelopmental Program, and on the second visit, she asked me if I felt like he needed to be seen and kept commenting on how great he was doing. His behavior seems to ebb and flow, and he was having a good day at that time, so I kind of stammered, “I dunno, yeah, he’s doing great!” and that was the last time he was seen there.
We had been (supposedly) put on the waiting list for the best OT in town since August or September, and she has never called us.
Add to all of that a bill I received for $200 for what I was under the impression were covered services, and I just couldn’t do it any more.
For this to all work for us, it would need to be (1) covered by insurance and/or the state as I was under the impression it was; (2) in-home services as I just can’t drag BOTH boys around (especially when the OT doesn’t want Nate around to “distract” when Ace is to be seen — what am I supposed to do with Nate? Lock him in the car?); and (3) provided by caregivers who don’t tell me one week how he clearly has issues and then look at me the next week like I’m an idiot for having him in the program. The funny thing is, everyone I have ever talked to who has a child in EI says it has been free or covered and that they receive in-home services. So why is it that I can’t seem to find the same?
However, I did get a call today from A-M, our EI coordinator who was checking in to see how things were going. I will say that through all of this, she has been really great. She’s done as she said she would, and I know if I talk to her, she will help me get back on track. However, as she was starting to ask how things were going, I saw that I apparently had forgotten to put a diaper on Ace after I took his dirty one off and not only did he leave a fresh poop-cake on the floor, but Nate had found it and was poking and squishing it. Nice. I told A-M I would call her back, and I will… tomorrow.