…there’s a way. Last night, as I was laying in bed, it dawned on me how I can pay for therapy for Ace. If I pay for a few hundred dollars worth up front, I can submit to my FLEX spending and get reimbursed within a week or two. So that way, we’ve got a month or two of therapy paid for, then that gives us time to save up for the next group of sessions. I called back first thing this morning to let them know I want an appointment so we go at 1:30 pm on Thursday.
The therapist called me to set the appointment and I liked her. I gave her the brief version of what we’ve been through so far, and why we stopped seeing the last Occupational Therapist (OT). The last one was good the first visit, but the second visit, she kept saying how Ace seemed “fine” and asking me if I felt he needed the therapy, which made me question myself and feel like I was wasting her time, so we never went back.
But today, I told L (the new therapist) that what the last therapist concluded after just two hours with Ace was not the whole story, and that I am with him 24/7 and I know he needs more. I told her that I agreed with some parts of Ace’s previous evaluation, but other parts were off base (for instance, I believe he has low registration (meaning he needs more sensory input to “register” with his sense) but I don’t think it’s auditory as the last OT concluded. I am certain that it’s vestibular. Here’s an excerpt I found on the web to explain it a bit better:
The child who is underreactive to vestibular input doesn’t seem to get dizzy even after spinning for a long time, and seems to enjoy fast movement like swinging. She may be clumsy, and may stumble or fall frequently. She may not make an attempt to catch herself when she falls…
I also believe has has proprioceptive issues as well, which refers to body placement and the awareness of where the body is in space. People with proprioceptive disorders can be clumsy and uncoordinated. He has some very refined fine motor skills (you should see him stab a piece of food with a fork, then hold it up in triuph and yell “STAB!”) but at the same time, he is, as A-M, our EI coordinator dubbed it, very “floaty” when he walks and is somewhat clumsy.
I guess we’ll find out soon enough how accurate my mommy-diagnosis is…
The one thing that’s been weighing on me, though, and hopefully we will have answers to soon enough, are the possibility of Asperger’s Syndrome or high-functioning Autism. I don’t believe Ace is “classic” Autistic — the uncommunicative type that generally comes to mind when you think Autism. But ironically, as far back as before he was discharged from St. Joseph’s Hospital after his birth, I have felt and worried he is Autistic. I don’t think it’s even possible to diagnose a 20 day old premature infant (change that to I’m SURE you can’t) but I felt it then, and the feeling has come and gone these past 18 months. If you read back to my May 1 blog post, a commentator relayed her situation with her son who has Asperger’s, and I’ve also received other private messages about friend’s children with Asperger’s. There are definite similarities. He has some oddities that make me wonder, but I’m not going to go into detail now.
My head says that he is not Autistic in any way, but my heart isn’t so sure. If he is, he would definately fall on the high-functioning end of the spectrum, and I think at worst, he’ll be a little “odd” to those who don’t know him, but nothing to impair his quality of life. I hesitate to even mention these concerns here, as I may be completely off base (and will happily stand corrected), but I feel like I need to be prepared… just in case.
I need to upload some pictures to our family web site so Skip can write his funny comments, so I better get working on that. I still need to carve out time to update on the boys’ 18 month well baby visit with the pediatrician as well as their 18 month dental exam. Perhaps tomorrow.